So im going to be very honest in this post. It really hasnt been easy being Levi's mother since his birth. There has been too many ups and downs, disappointments, time wasted, patience drying up, elated moments, feelings of hopelessness and exhaustion.
Being a 35weeker and a boarder line prem, i thought he wouldn't have any problems. The day i found out he has a slight birth defect (he cant pass motion on his own), my world crumbled. I questioned God n everyone around me. Why me? Why us? Why my sweet sweet boy? But the doctors and nurses at sgh were always reassuring that that is a cure. And for now we just have to help him get his poo out until he sees a surgeon and is scheduled for a surgery to correct it. There is a cure for this birth defect and its fair more common than we thought. Then his eye came up too. It was another slap in my face. Again? Another defect? Why??? Isnt one problem enough for him to handle?
I tried so hard to soldier on and stay strong for my boy. It was until his first washout that sean and i witnessed that sean was vulnerable and broken for his son. He saw his son suffering and it broke his heart. For me i was totally fine. Maybe because i myself have to cathetar myself several times a day, im used to seeing such things and as long as this is helping him, its ok.
It was always a waiting game when it came to Levi's 2 defects. His eye we were told by the eyelid specialist we had to wait till hes older and see what happens. With his rectum we had to wait till he was a good weight before a surgery could be done.
He finally hit 4 plus kgs n was given the green light to do a psarp surgery. Basically to shift his anus down and to make it bigger. Also to test if his intestines showed movement and a biopsy to rule out hirschsprung.
I was so hopeful the surgery would cure him. But of course i was anxious too when they carried my fragile tiny baby away from me into the operating theatre.
Post surgery again we had to wait. And then abt more than 12hours post surgery Levi stopped breathing and had to be resuscitated. If he didnt recover on his own we could have lost him. At that moment when we received the call from the hospital sean and i were pretty calm. But thinking back yes my son could have died if he didnt have the strong will to live.
It was another waiting game cause he needed to fast for another 7days so to not poop n aggravate the wound. Once he started milk i wws hopeful that yes he will finally poo. We waited and waited. Nothing. Well just small stains not sufficient enough and he was getting too bloated. So back to washouts.
I was frustrated and losing my patience. I hated the sight of the hospital and making trips to the hospital everyday. I just wanted him home.
Finally he was given the green light to go home after 17 horrible long days. But still no spontaneous poo on his own. Whatever as long as my baby is home.
A few days later he managed to do 4 spontaneous poo on his own. I was soooo happy i snapped pictures and sent to family. I felt hopeful again. But then after 4 poops, nothing again.
Its been 2wks n nothing. Stains here n there but nothing as significant to celebrate about. So what now? What happens now? Do we really hav to keep waiting?
I hate that no actual diagnosis is given because his biopsy results are inconclusive. But the frustrating part is i have no clue what is going to happen next. Everyone keeps asking me and its honesty so hard to keep a straight face n say anything cause i just get so touchy and emotional that his surgery may not have worked.
So many friends and family always commend me for my bravery and being a mother of 2 at 23years old and 1 child having so many adversities. But really most days im hating the world n feeling bitter and resentful towards God for making my son like this. Now dont go preaching to me that i need to pray and trust in God. Cause thats wat ive been doing but apparently God must hate me or something. Ive heard this too many times "God doesnt give you more than you can handle." well he clearly forgot that im a mother now and im vulnerable and super weak when it comes to my kids. Well every mother is.
So yea my faith is indeed shaken now. Cause why of all the billions of people in this world why pick me to have 2 premature kids and i had to go through tough hospital journeys with?!
I know Levi's medical problems arent terminal and neither are they super major like those other terminally ill kids. But im sure every parent who has a not so well kid will blame God and question the why me why my child.
How fitting i chose to share this during Easter. I know im not a super devoted and faithful christian who prays everyday or go church every week. But ive never done any seriously bad horrible things for bad things to happen to my kids. So yea i feel its pretty unfair. How do I trust in a God that has somehow forsaken my child?
Im exhausted and frustrated. But i still need to find some where in me to stay strong for my child. Cause clearly he has a dam strong fighting spirit. Way stronger than me. Its so heartbreaking to hear your child scream in pain and face turns all red and voice goes hoarse every time i dilate him (insert a metal rod into his anus) twice a day. But he has truly showed me what a brave boy he is cause even though he goes through this crap twice a day, he still always smile and babbles happily after we are done with his dilation. He is indeed a great little baby.
I just need a miracle or a sign that things will only get better....
Friday, 25 March 2016
The ups and downs of being L's mother
Tuesday, 10 November 2015
Loss...
These days i really have been struggling emotionally. I find myself crying alot. Mostly because i am preparing to mourn the loss of my relationship with Gwyn. You see in another 5-6weeks we will welcome her brother. She will no longer be our only child. She will no longer have all our attention. And this i find it so hard. I battle and struggle with this every night. Sometimes i find myself hugging her so tight cause i dont wanna let this relationship go. As i hold her tears will roll down my face. It breaks my heart thinking that when her brother comes im no longer just hers alone. Im also afraid how i would manage time with her alone. Especially trying to figure out a newborn and breastfeeding is going to take away time with G. G is surrounded by so many people who loves her. Im not worried of her being neglected or forgotten just because of her brother. But im afraid of the time baby L will rob away from her. And G and i are super close. As much as i should be resting and letting grandma, mama or daddy look after her more, i really wanna take these last few weeks to really treasure my time with her. You may think its silly but the fact is some things will change. And it is a phase all mothers expecting number 2 will go through. Whats even more sentimental is that G is a preemie. Shes our lil special warrior.
I also mourn the loss of my baby. My baby will no longer be my baby anymore but a full fledged toddler, a big sister. Time.. I also mourn the loss of time because these 18months of G's life has flown by too fast. And it hurts to think one day she won't need me anymore. She will no longer wanna hang out with mummy and daddy anymore, she no longer needs to be carried or want her hands to be held. Growing up really sucks...
This journey of motherhood is not going to be easy especially for someone so sentimental and emotional like me. And there will definitely be a lot of tears shed during the first few weeks of being a mother of two. So I can only pray for strength and a lot of support.
My dearest Gwyneth,
You are my first born and will always hold a special place in my heart. Things may change, you have to be brave and know that we love you and your brother very much. Mummy may not spend as much one on one time with you when baby brother comes out. But I promise you once I understand your brother we will have our special moments again. Just know that everyone loves you so much and that will never change.
If you need and want mummy, I will always be there for you. But give me time please to adjust to your new brother. We all need time to adjust to our new family member. But I promise you mummy and daddy will never neglect you. Don't ever feel you are replaced by your brother. Cause you are irreplaceable.
Maybe you are too young to understand fully who this didi is we keep telling you about. So don't be shocked when you see him. I know you will love you brother so much cause you just have so much love to give in your tiny heart. And you are so amazing.
Mummy loves you so much. Forever and ever you will always be my Lil angel....
Sunday, 17 May 2015
2 children's emergency visits and 1 GP visit
Saturday came.. I woke up with a fever, bad sore throat, cough and flu. Great I have officially been infected. Not a good time for me to fall sick at all!! I battled my fever and still went for a good friend's birthday party. But I was quiet as a mouse cause by night time my sore throat was so bad I couldn't even talk!!
By 12am I asked Sean to take me to a 24hour clinic cause I couldn't take it anymore. Waited 1hour plus cause for some reason everyone chose to be sick at this time too. Doctor says i was really weak (that i shall talk about why another time) Spent $190 (more ex than ane by the way but honestly best $190 I spent cause I do feel better after all the medications) Came home and popped all my pills and went to bed. My fever kept coming and going too. The amount of phlegm I had spat or sneezed out could probably fill a 1.5l PET bottle. Every time I swallow it feels like 2 crusty rocks rubbing against each other. Really FML this time.
Thankfully G's fever hasn't come back the whole of tonight. I guess she's better cause she's drinking my milk and she has passed the virus to me -.-
Now my sis and mum are coming down with a flu. But I'm so thankful for my family especially my mum for looking after G over the past few days. My mum hasn't fallen as sick like me despite having G sleep with her and not having much sleep either. I would have taken care of G on my own if I weren't so sick. So I'm thankful and G is blessed to have a loving grandma.
G and I are staying at my mum's this week as I'm too weak to look after her on my own and we don't wanna spread our nasty germs to the kids and family in the other house. Sean is also coughing already. So its best we 3 stay as far away as possible from each other. Hoping I get well by tomorrow!!
The most exhausting and trying week ever! G has never fallen this sick over the past year and I'm so thankful for that. This time there is some nasty virus going around and infecting all the children! Cause I know a few other friends kids who are down too. Sighhh... Must be the weird weather too.
Be gone virus!!!
Saturday, 9 May 2015
To all mothers
And then there are mothers like me.... who spent my first mothers day in the nicu cheering my little bub along. No one wishes to be a mother like me. I remember last year during mothers day i just bawled my eyes out during lunch with Sean cause all i saw were families smiling and spending a special day with their children while mine was in the hospital fighting. All i wanted to rob her away from the hospital and bring her home to be with me.
Fast forward this year, I am truly blessed to be Gwyneth's mother. I never expected being a mother can be so rewarding and fulfilling. I am lucky enough to be with her for the past year and still continuing so. We have such a great and close bond; Im proud to say I cant even pee in peace cause all she wants is me. HAHA.
Whatever mother you are... just know that you are doing the best you can, being the best mother you can be for your child. And though G is so young, I know she knows that Im doing the best I can to fulfill my role as her mother.
So HAPPY MOTHERS DAY TO ALL! you deserve it great mothers (:
Wednesday, 29 April 2015
Gwyneth's magical pony 1st birthday
Ive always wanted a dessert table since my wedding but getting people to do them is so expensive. I love that companies do personalise things and all but really for the money i rather save it and do it myself. So I customised a banner with a picture of G, with her name and ponies on it. Graphics, price and quality were great!